Skip to content
Living With HIBM
  • How You Can Help
  • About Me
  • Home
Uncategorized

Permeable Membranes

  • July 14, 2017November 18, 2017

I have been a feeler of feelings for as long as I can remember. When I was young, I used to write long, sentimental birthday and Mother’s and Father’s Day cards.  My sister used to tease me (still does), about my overly expressive, touchy-feely “treatises.” On Thanksgiving, I was always the one (still am) to make people go around and share what they were thankful for in the past year. Or on Shabbat, what they were grateful for in the past week. I have about 15 diaries from my youth, sitting in my garage, all filled with pages and pages of feelings.

Read more “Permeable Membranes” →

Uncategorized

Muted Screams of Summer

  • July 7, 2017November 18, 2017

Summer used to be one of my favorite seasons. Not just because it is kicked off by my summer solstice birthday, but because there has (historically) always been a carefreeness built into my summers- wearing sundresses and flip-flops, frolicking around at the pool or beach, traveling on summer vacations (my personal favorite). Throw in hours of sunshine and long lazy summer nights and there’s not much to not love.

Read more “Muted Screams of Summer” →

More Information about HIBM

Please visit the NDF website for more information about HIBM and how you can help fund a cure Neuromuscular Disease Foundation

Subscribe to “Living with HIBM”

Join the email list to get notification of new posts.
CLICK HERE TO SUBSCRIBE

Archive

  • January 2023
  • March 2022
  • September 2021
  • June 2021
  • May 2021
  • January 2021
  • July 2020
  • April 2020
  • January 2020
  • October 2019
  • August 2019
  • May 2019
  • November 2018
  • October 2018
  • September 2018
  • February 2018
  • January 2018
  • December 2017
  • November 2017
  • October 2017
  • September 2017
  • August 2017
  • July 2017
  • February 2017
  • January 2017
  • December 2016
  • September 2016
  • April 2016
  • March 2016
  • February 2016
  • November 2015
  • October 2015
  • August 2015
  • July 2015
  • June 2015
  • April 2015
  • March 2015
  • January 2015
  • December 2014
  • November 2014
  • October 2014
  • September 2014
  • August 2014
  • June 2014
  • May 2014
  • April 2014
  • March 2014
  • November 2013
  • September 2013
  • August 2013
  • June 2013
  • May 2013
  • February 2013
  • January 2013
  • December 2012
  • October 2012
  • August 2012
  • June 2012
  • May 2012
  • March 2012
  • February 2012
  • December 2011
  • November 2011
  • August 2011
  • July 2011
  • June 2011
Theme by Colorlib Powered by WordPress