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Reflections from an airport. (Be forewarned, there are a…

  • October 13, 2014November 18, 2017

Sometimes I like to wait until I’ve more fully processed my thoughts and feelings about something before writing a blog post. And other times, I blog about something to more fully understand how I feel and where I stand on something. This is one of those times.

Yesterday I spent an entire day from 9am to 6:30pm sitting in a small lecture hall (which appeared to have been cryogenically frozen since 1979) at Beuth Hochschelu für Technik Berlin aka the University of Applied Sciences. I was there for the GNE Myopathy (the new name for HIBM) Consortium. Virtually every scientist/researcher who is working directly on HIBM or indirectly on neuromuscular diseases, gene therapies or metabolic treatments was there.

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Berlin

  • October 11, 2014November 18, 2017

I am in Berlin. Yes, Berlin, Germany. If you read my last post, then I know you already know this. But I’m still taking it in. And though I have carved out this specific time in front of my laptop for gala speech-writing, I can’t seem to focus on it. So instead (and since this is why I started blogging in the first place), I’m going write about the space I’m in right now.

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Hank and Me

  • October 8, 2014November 18, 2017

Never in my life did I think I’d find myself hanging out with Hank. He was simply not my type. I saw no reason to ever have to get close to someone like him. We just didn’t have a connection.

A couple of years ago, it seemed that everywhere I went, I saw Hank. I rebuffed his advances at first, but he kept pursuing me. Usually, that kind of perseverance is a turn on, but not this time. Personally, I didn’t find him very attractive and I felt like he’d never be able to keep up with my fast-paced life. If anything, he would interfere with it. Plus, he’s just kind of annoying. He requires a lot of attention, always needing to hold hands, always fearful of getting left behind somewhere. Not to mention, he’s totally socially awkward. He doesn’t know what to say when he walks into a room of new people. He’s only ever come out with me a few times, but he’s always so self-conscious. I try to tell him he has nothing to be embarrassed or ashamed of, but he’s still quite shy.

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