March, 2014 - Living With HIBM

To my fellow HIBMers who know these feelings all…

March 21, 2014November 19, 2017

That feeling you get when…

…you physically can’t move out of the way (as in, just side step) when someone’s trying to get by and he or she thinks you’re just being rude.
…there’s an earthquake and you realize you are completely helpless to escape in that moment (let alone to be able to run to your kids when they may need you most).
…someone who’s ahead of you (and maybe in a rush) is being kind by holding the door open for you and you feel terrible because they don’t realize how long they will have to wait until you hobble your way over to them.

I’ll Go On

March 1, 2014November 19, 2017

Today is international Rare Disease Day. And on this rare, very rainy Friday in Los Angeles, what was most on my mind all day was the fact that before HIBM, I don’t think I ever once thought to consider the impact the weather can have on the lives of people with disabilities. I don’t judge myself for it. It’s just one of those things that would likely never enter into one’s mind unless or until one is confronted by it first-hand. I am lucky to live in Los Angeles, where the elements almost never work against me. And so it is probably because of the infrequency of such weather that it hits me as hard as it does and did today.