Rare

Today marks the 6th international Rare Disease Day, a day dedicated to raising awareness of rare diseases among patients, non-patients and the scientific community. It is a day that would never have been on my radar had I not been diagnosed with HIBM almost 7 years ago.  I spent some time thinking about what I could post on my blog to mark this day. And to be honest, I wasn’t coming up with much.

Read more “Rare” →