{"id":71,"date":"2014-09-17T21:23:55","date_gmt":"2014-09-18T04:23:55","guid":{"rendered":"http:\/\/gator3119.hostgator.com\/~holdenjl\/?p=71"},"modified":"2017-11-18T19:49:57","modified_gmt":"2017-11-19T03:49:57","slug":"quick-follow-uplove-is-everything","status":"publish","type":"post","link":"https:\/\/livingwithhibm.com\/?p=71","title":{"rendered":"Quick follow-up\/Love is Everything"},"content":{"rendered":"<p>I&#8217;m not usually one to blog two days in a row, so I will try keep this short and to the point&#8230;<\/p>\n<p>The profoundly therapeutic effect of the kind of love and compassion that comes pouring in after a blog post is one that never ceases to amaze me.\u00a0My reality from last night to today hasn&#8217;t changed, yet my emotional state feels so much more calm, regulated and at peace. Less fearful. More hopeful. Less alone.<\/p>\n<p><!--more--><\/p>\n<p>I have spent a lot of time thinking about this phenomenon. How it happens. What factors contribute to the shift\u00a0in mood. \u00a0Wondering how I can feel so good when a part of my life is so bad. And\u00a0it always comes back to the same few things: authenticity, honesty, vulnerability and a willingness to love and be loved.<\/p>\n<p>You may be thinking to yourself, &#8220;There she goes again with the vulnerability piece.&#8221; But I can&#8217;t help myself. And I should warn you, I am probably going to be talking about it until the end of my time here, because I truly believe it is the key to a meaningful and successful life. And if I sound preachy, I apologize. But I like to think I have some street cred when it comes to this, which is why I hope you&#8217;ll trust me and just sit with it for a moment.<\/p>\n<p>It feels so scary, \u00a0to\u00a0expose yourself. \u00a0There are so many unknowns. And there are no take backs once\u00a0you let people in. But if you choose to surround yourself with people who can hear it and hold it, if you invest in friendships by truly letting another person in on\u00a0where you&#8217;re at and if you allow\u00a0\u00a0them to feel safe enough to do the same, well, then the internal emotional quality of your life no longer becomes dependent on your physical state or your income or \u00a0your status or any other aspect of your external reality. Instead, true happiness (at least in my humble opinion) comes from true love. Romantic love, friendship love, family love, community love and of course, the love of oneself.<\/p>\n<p>And speaking of compassion for oneself, for those who wished me luck today, who thought of \u00a0me and\u00a0\u00a0rooted for me in anticipation\u00a0my appointment, I should share that in the end, I did not\/ chose not to go. Of course, my first thoughts or rather, \u00a0judgements of myself were that I was chickening out, that &#8220;I guess I wasn&#8217;t as brave as I thought I was.&#8221; (Unfortunately, that voice is often the loudest at first.) But then I gently reminded myself that there are no rules or &#8220;shoulds&#8221; in the game of coping. We all have to\u00a0go at our own pace. We have to truly understand ourselves and honor where we&#8217;re at. Everyone&#8217;s process is different. If you force it before you&#8217;re ready for it, it almost always backfires. I have learned that lesson enough times to respect the process.<\/p>\n<p>I didn&#8217;t reschedule my appointment yet. But I know I will. I know I will get there. For the time being, I am just going to keep staring at the driveway through the window of my living room&#8230;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I&#8217;m not usually one to blog two days in a row, so I will try keep this short and to the point&#8230; The profoundly therapeutic effect of the kind of love and compassion that comes pouring in after a blog post is one that never ceases to amaze me.\u00a0My reality from last night to today<\/p>\n<div><a class=\"btn-filled btn\" href=\"https:\/\/livingwithhibm.com\/?p=71\" title=\"Quick follow-up\/Love is Everything\">Read More<\/a><\/div>\n","protected":false},"author":1,"featured_media":476,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-71","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"aioseo_notices":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/08\/writing.jpg?fit=730%2C350&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5aYbC-19","jetpack_likes_enabled":true,"jetpack-related-posts":[{"id":47,"url":"https:\/\/livingwithhibm.com\/?p=47","url_meta":{"origin":71,"position":0},"title":"Birthdays, Blogiversaries and Blankets","author":"admin","date":"June 21, 2014","format":false,"excerpt":"Today is my 39th birthday and my blog's 3rd birthday. As a gift to both of us, I decided to kick it up a notch and graduate onto a new and improved platform.\u00a0 One might wonder why I didn't do this sooner (considering all of the snafus and technological hiccups\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2011\/06\/candle.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2011\/06\/candle.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2011\/06\/candle.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2011\/06\/candle.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":150,"url":"https:\/\/livingwithhibm.com\/?p=150","url_meta":{"origin":71,"position":1},"title":"Where to invest","author":"admin","date":"April 7, 2015","format":false,"excerpt":"I haven't written in a while. Not since January in fact. Lately I've been spending some time\u00a0thinking about why that is. It's definitely not for lack of difficult or painful experiences related to living with HIBM. \u00a0I have come to realize that such experiences are built into my daily life\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/04\/calendar.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/04\/calendar.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/04\/calendar.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/04\/calendar.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":217,"url":"https:\/\/livingwithhibm.com\/?p=217","url_meta":{"origin":71,"position":2},"title":"Kitchen dreams (and nightmares)","author":"admin","date":"November 1, 2015","format":false,"excerpt":"As I sat down to write this post, I realized how often the topic of my home has come up on the blog. Or at least, that's how it feels. Probably because I'm so intimately acquainted with it on a such a micro-physical level. It plays an integral role in\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/11\/potspans.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/11\/potspans.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/11\/potspans.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/11\/potspans.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":334,"url":"https:\/\/livingwithhibm.com\/?p=334","url_meta":{"origin":71,"position":3},"title":"Permeable Membranes","author":"admin","date":"July 14, 2017","format":false,"excerpt":"I have been a feeler of feelings for as long as I can remember. When I was young, I used to write long, sentimental birthday and Mother's and Father's Day cards.\u00a0 My sister used to tease me (still does), about my overly expressive, touchy-feely \"treatises.\" On Thanksgiving, I was always\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/07\/letter.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/07\/letter.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/07\/letter.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/07\/letter.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":15,"url":"https:\/\/livingwithhibm.com\/?p=15","url_meta":{"origin":71,"position":4},"title":"The Jennifer Room","author":"admin","date":"September 29, 2013","format":false,"excerpt":"About a month ago, I received an invitation to attend a \"Patient Day\" reception hosted by Dr. Emil Kakkis, CEO of Ultragenyx. Ultragenyx is the biotech company that is currently in phase II of a clinical trial for a potential treatment to slow the progression of HIBM. \u00a0Dr. Kakkis was\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/09\/IMG_0450.jpg?fit=1024%2C768&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/09\/IMG_0450.jpg?fit=1024%2C768&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/09\/IMG_0450.jpg?fit=1024%2C768&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/09\/IMG_0450.jpg?fit=1024%2C768&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":842,"url":"https:\/\/livingwithhibm.com\/?p=842","url_meta":{"origin":71,"position":5},"title":"Tunnels","author":"admin","date":"January 2, 2021","format":false,"excerpt":"We made it to 2021. No matter who you are or how you move through life, these are trying times. Even if denial is your go-to coping strategy, it\u2019s become increasingly difficult to avoid the discomfort. Loss is everywhere.\u00a0 When we hear that someone we know who has it or\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"concrete tunnel","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2021\/01\/pexels-photo-3043424.jpeg?fit=1200%2C800&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2021\/01\/pexels-photo-3043424.jpeg?fit=1200%2C800&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2021\/01\/pexels-photo-3043424.jpeg?fit=1200%2C800&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2021\/01\/pexels-photo-3043424.jpeg?fit=1200%2C800&ssl=1&resize=700%2C400 2x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2021\/01\/pexels-photo-3043424.jpeg?fit=1200%2C800&ssl=1&resize=1050%2C600 3x"},"classes":[]}],"_links":{"self":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/71","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=71"}],"version-history":[{"count":5,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/71\/revisions"}],"predecessor-version":[{"id":494,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/71\/revisions\/494"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/media\/476"}],"wp:attachment":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=71"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=71"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=71"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}