{"id":228,"date":"2015-11-27T12:23:24","date_gmt":"2015-11-27T20:23:24","guid":{"rendered":"http:\/\/livingwithhibm.com\/?p=228"},"modified":"2017-11-18T19:08:53","modified_gmt":"2017-11-19T03:08:53","slug":"thank-you","status":"publish","type":"post","link":"https:\/\/livingwithhibm.com\/?p=228","title":{"rendered":"Thank you"},"content":{"rendered":"<p>I was going to post yesterday, but I chickened out. I was going post about how, for someone who feels in touch with gratitude on a regular basis, \u00a0it was disappointing to not feel\u00a0it to the degree I normally do on Thanksgiving. \u00a0Thanksgiving is like my gratitude Superbowl.\u00a0It&#8217;s when we are all so in touch with all the ways in which we are blessed. \u00a0But I haven&#8217;t been feeling as grateful in this past month. \u00a0It sounds so taboo. I guess it&#8217;s not that I haven&#8217;t been feeling grateful, \u00a0it&#8217;s just that it&#8217;s been harder counteract all that I&#8217;m <em>not \u00a0<\/em>grateful for. And yesterday, \u00a0I didn&#8217;t want to be a buzzkill. Or even offend anyone. So today, \u00a0I wanted to share. I wanted to tell you about some experiences that have felt hard in this last month. And where I have ultimately found the gratitude.<\/p>\n<p><!--more--><\/p>\n<p>In October, my husband and I got away to Portland for the weekend. It was so great, except for the sad realization, once and for all, that I can&#8217;t really explore a new city on foot the way I used to, the way I wish I could. \u00a0Even stepping up onto a curb has proven to be a challenge. While we were there, on that Saturday night, we waited in the hour-long line in the drizzling rain at a famous ice cream shop. We were having so much fun, except for when I walked out of line to go to the bathroom, slipped and fell, had a crowd gather around me, heard a bystander so sympathetically say, &#8220;oh no, she has a cane&#8221; and somehow ended up getting helped up by a police officer.<\/p>\n<p>A couple of weeks ago, I attended an annual psychopharmacology conference at the Skirball. It&#8217;s always a wonderful opportunity to see old friends from residency, but this time, it was also an unwelcome opportunity to see how much I&#8217;ve progressed since the last time I was there. I can handle the more &#8220;minor&#8221; challenges like difficulty clipping my name tag onto my lapel or trying to keep up with everyone while heading to the luncheon area. But sitting down for lunch and watching everyone at my table so effortlessly cut into their food, while I sat their acutely aware of how awkwardly I now hold my utensils and struggle to cut my own food, did not feel like something I could handle. It took all of me to not flash forward to a time where I might have to sit down to a meal and ask the person next to me if he or she wouldn&#8217;t mind cutting my chicken for me.<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>If you&#8217;re still here, if you&#8217;re still reading, if you are still with me, I am grateful for you.<br \/>\nI have tried to hold these experiences quietly within myself. But I can&#8217;t. I can&#8217;t hold them alone. They are too heavy. They will crush me.<\/p>\n<p>Thank you for holding them with me. Thank you for not running away out of discomfort or fear. Thank you for receiving my invitation and for choosing to attend.<\/p>\n<p>I am grateful for you and I am grateful for the one thing this disease has forced upon me- the strength to share and be vulnerable. Because if I didn&#8217;t have it, if I couldn&#8217;t do what I&#8217;m doing right now, I would be so lonely. And the loneliness of carrying this by myself would disable me in a way that, unlike all the rest, I wouldn&#8217;t be able to adapt to.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I was going to post yesterday, but I chickened out. I was going post about how, for someone who feels in touch with gratitude on a regular basis, \u00a0it was disappointing to not feel\u00a0it to the degree I normally do on Thanksgiving. \u00a0Thanksgiving is like my gratitude Superbowl.\u00a0It&#8217;s when we are all so in touch<\/p>\n<div><a class=\"btn-filled btn\" href=\"https:\/\/livingwithhibm.com\/?p=228\" title=\"Thank you\">Read More<\/a><\/div>\n","protected":false},"author":1,"featured_media":471,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-228","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"aioseo_notices":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/11\/thanks.jpg?fit=730%2C350&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5aYbC-3G","jetpack_likes_enabled":true,"jetpack-related-posts":[{"id":586,"url":"https:\/\/livingwithhibm.com\/?p=586","url_meta":{"origin":228,"position":0},"title":"Grateful and hateful","author":"admin","date":"November 23, 2017","format":false,"excerpt":"It\u2019s that time of year when friends and families gather together to celebrate all that they have. Facebook and Instagram feeds blow up with hashtags like #Thankful, #Grateful and #Blessed. We focus on silver linings and bask in the light and warmth of bright sides. I am a huge fan\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/11\/scale.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/11\/scale.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/11\/scale.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/11\/scale.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":700,"url":"https:\/\/livingwithhibm.com\/?p=700","url_meta":{"origin":228,"position":1},"title":"Thankful for you. Please, let\u2019s keep it up.","author":"admin","date":"November 23, 2018","format":false,"excerpt":"On Sunday night, November 11th, the Neuromuscular Disease Foundation hosted its most successful event to date. The Gala for the Arts was a sold out evening that brought together\u00a0exquisite\u00a0art and\u00a0beautiful music. It was an opportunity to celebrate\u00a0honorary\u00a0members of\u00a0the GNE Myopathy community\u00a0along with\u00a0the\u00a0exciting $2.5 million\u00a0matching grant the NDF recently\u00a0received from an\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/11\/IMG_2446.jpg?fit=800%2C533&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/11\/IMG_2446.jpg?fit=800%2C533&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/11\/IMG_2446.jpg?fit=800%2C533&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/11\/IMG_2446.jpg?fit=800%2C533&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":334,"url":"https:\/\/livingwithhibm.com\/?p=334","url_meta":{"origin":228,"position":2},"title":"Permeable Membranes","author":"admin","date":"July 14, 2017","format":false,"excerpt":"I have been a feeler of feelings for as long as I can remember. When I was young, I used to write long, sentimental birthday and Mother's and Father's Day cards.\u00a0 My sister used to tease me (still does), about my overly expressive, touchy-feely \"treatises.\" On Thanksgiving, I was always\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/07\/letter.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/07\/letter.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/07\/letter.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/07\/letter.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":34,"url":"https:\/\/livingwithhibm.com\/?p=34","url_meta":{"origin":228,"position":3},"title":"Bittersweet","author":"admin","date":"August 21, 2011","format":false,"excerpt":"It's been a while. Life has been a whirlwind and I haven't really had a moment to take it all in. I am grateful for the chaos though, as it keeps me too busy to get stuck inside my head for too long...\u00a0 Today marks the beginning of an exciting\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2014\/10\/clouds.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2014\/10\/clouds.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2014\/10\/clouds.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2014\/10\/clouds.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":25,"url":"https:\/\/livingwithhibm.com\/?p=25","url_meta":{"origin":228,"position":4},"title":"That time of year&#8230;","author":"admin","date":"June 21, 2012","format":false,"excerpt":"For the last few years, birthdays have been a bit tricky for me. \u00a0As I shared in my very first blog posting one year ago (yes, it's my blog's anniversary tomorrow), having a progressively debilitating disease can make any regularly-occuring marker of the passage of time anything but celebratory. What's\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2012\/06\/birthday_.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2012\/06\/birthday_.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2012\/06\/birthday_.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2012\/06\/birthday_.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":169,"url":"https:\/\/livingwithhibm.com\/?p=169","url_meta":{"origin":228,"position":5},"title":"What goes up must come down","author":"admin","date":"June 5, 2015","format":false,"excerpt":"I've had a good few months. Like, really good. If you've hung out with me lately, you've probably had the fleeting thought of, \"Um, is Jen on stimulants?\" As in, I've been talking fast and thinking fast- what I jokingly refer to as feeling \"high on life.\" And though the\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/06\/balls.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/06\/balls.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/06\/balls.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2015\/06\/balls.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]}],"_links":{"self":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/228","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=228"}],"version-history":[{"count":8,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/228\/revisions"}],"predecessor-version":[{"id":472,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/228\/revisions\/472"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/media\/471"}],"wp:attachment":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=228"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=228"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=228"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}