{"id":14,"date":"2013-11-14T05:01:00","date_gmt":"2013-11-14T05:01:00","guid":{"rendered":"http:\/\/gator3119.hostgator.com\/~holdenjl\/?p=14"},"modified":"2017-11-19T13:01:14","modified_gmt":"2017-11-19T21:01:14","slug":"my-speech-from-this-years-ndf-gala","status":"publish","type":"post","link":"https:\/\/livingwithhibm.com\/?p=14","title":{"rendered":"My speech from this year’s NDF Gala"},"content":{"rendered":"
\n

Below is the link to the speech I gave as an honoree at this year’s NDF Gala at the Beverly Hills Hotel on October 17th, 2013. It was an incredibly successful event, selling out to over 600 guests and raising almost half a million dollars. \u00a0Thank you to everyone who helped make it possible.<\/p>\n

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\u00a0<\/span>http:\/\/vimeo.com\/79357093<\/a><\/p>\n<\/div>\n

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 <\/p>\n\n\n\n
\"Annual<\/a><\/td>\n\n
Annual Neuromuscular Disease Foundation Gala. Jennifer’s Speech<\/strong>
\nhttp:\/\/vimeo.com\/79357093<\/a><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n
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<\/div>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Below is the link to the speech I gave as an honoree at this year’s NDF Gala at the Beverly Hills Hotel on October 17th, 2013. It was an incredibly successful event, selling out to over 600 guests and raising almost half a million dollars. \u00a0Thank you to everyone who helped make it possible.  <\/p>\n

Read More<\/a><\/div>\n","protected":false},"author":1,"featured_media":582,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-14","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"aioseo_notices":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/11\/speech4.jpg?fit=730%2C350&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5aYbC-e","jetpack_likes_enabled":true,"jetpack-related-posts":[{"id":114,"url":"https:\/\/livingwithhibm.com\/?p=114","url_meta":{"origin":14,"position":0},"title":"My speech from this year’s NDF gala","author":"admin","date":"November 28, 2014","format":false,"excerpt":"I am so thankful for all the people who tirelessly dedicated themselves to making this year's NDF gala yet another successful event. You can click on the link below to watch my speech... \u00a0 My speech from this year's NDF gala 2014","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/06\/mic2.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/06\/mic2.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/06\/mic2.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2013\/06\/mic2.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":770,"url":"https:\/\/livingwithhibm.com\/?p=770","url_meta":{"origin":14,"position":1},"title":"The NDF ARTS GALA","author":"admin","date":"October 31, 2019","format":false,"excerpt":"I\u2019ll be be honest, it feels like there\u2019s a lot of darkness out there these days. The global state of affairs is increasingly unsettling. The continued threats from fires on a local level are increasingly terrifying. And on a more personal level, the black eye and bruised nose and chin\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2019\/10\/img_7342.jpg?fit=735%2C1079&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2019\/10\/img_7342.jpg?fit=735%2C1079&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2019\/10\/img_7342.jpg?fit=735%2C1079&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2019\/10\/img_7342.jpg?fit=735%2C1079&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":30,"url":"https:\/\/livingwithhibm.com\/?p=30","url_meta":{"origin":14,"position":2},"title":"Jennifer’s NDF-HADASSAH Speech from the Fundraising Gala for HIBM Resear…","author":"admin","date":"February 22, 2012","format":false,"excerpt":"","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2012\/02\/speech3.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2012\/02\/speech3.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2012\/02\/speech3.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2012\/02\/speech3.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":700,"url":"https:\/\/livingwithhibm.com\/?p=700","url_meta":{"origin":14,"position":3},"title":"Thankful for you. Please, let\u2019s keep it up.","author":"admin","date":"November 23, 2018","format":false,"excerpt":"On Sunday night, November 11th, the Neuromuscular Disease Foundation hosted its most successful event to date. The Gala for the Arts was a sold out evening that brought together\u00a0exquisite\u00a0art and\u00a0beautiful music. It was an opportunity to celebrate\u00a0honorary\u00a0members of\u00a0the GNE Myopathy community\u00a0along with\u00a0the\u00a0exciting $2.5 million\u00a0matching grant the NDF recently\u00a0received from an\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/11\/IMG_2446.jpg?fit=800%2C533&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/11\/IMG_2446.jpg?fit=800%2C533&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/11\/IMG_2446.jpg?fit=800%2C533&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/11\/IMG_2446.jpg?fit=800%2C533&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":691,"url":"https:\/\/livingwithhibm.com\/?p=691","url_meta":{"origin":14,"position":4},"title":"Desperation, Hope and a Plea","author":"admin","date":"October 9, 2018","format":false,"excerpt":"I\u2019m going to keep this post short and to the point because I need your attention now more than ever. In fact, I need your help. A few weeks ago, I attended the 5th annual Neuromuscular Disease Foundation symposium, which brought together patients and scientists from around the world. It\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2018\/10\/img_1719.jpg?fit=362%2C200&ssl=1&resize=350%2C200","width":350,"height":200},"classes":[]},{"id":57,"url":"https:\/\/livingwithhibm.com\/?p=57","url_meta":{"origin":14,"position":5},"title":"Darkness and Light","author":"admin","date":"August 30, 2014","format":false,"excerpt":"A few weeks ago\u00a0my sister, who has been tirelessly dedicating herself to planning this year's NDF gala in November, asked me if I'd be willing to speak at it. \u00a0I\u00a0told her that of course I would. That I am always willing to\u00a0contribute in any way\u00a0she or the Board thinks would\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/10\/stairs.jpg?fit=730%2C350&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/10\/stairs.jpg?fit=730%2C350&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/10\/stairs.jpg?fit=730%2C350&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/livingwithhibm.com\/wp-content\/uploads\/2017\/10\/stairs.jpg?fit=730%2C350&ssl=1&resize=700%2C400 2x"},"classes":[]}],"_links":{"self":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/14","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=14"}],"version-history":[{"count":1,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/14\/revisions"}],"predecessor-version":[{"id":581,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/posts\/14\/revisions\/581"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=\/wp\/v2\/media\/582"}],"wp:attachment":[{"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=14"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=14"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/livingwithhibm.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=14"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}