Visit the Neuromuscular Disease Foundation to get more information about HIBM
The Neuromuscular Disease Foundation’s (NDF) mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach and funding critical research focused on treatments and a cure. Learn more here.
The NDF has several different ways to help find a cure. Visit here to find out how you can help and to make a donation.